July 11, 2007

Parents in denial

I hear a lot about parents "in denial" about the seriousness of a child's eating disorder.

And I do see parents who appear to be denying how ill their child is. I meet parents seeming to enable the illness by settling for low weights or resisting high calorie meal plans. I talk with parents who don't want to drive any further, pay any more, sit through any more disheartening meals, attend any more sessions, or just want it to be over.

But I don't call it denial. I call it fear exacerbated by incoherence in the treatment world.

It is too easy to call a parent "in denial" when they don't know which - of all the contradictory, ineffective, unquantifiable options available - treatment direction to pursue.

It is too convenient to say a parent is "in denial" when they do what a seemingly competent and well-meaning professional says to do and when it doesn't work the next professional upbraids them for listening to the first idea.

It is inhumane to observe a parent in distress and fear and worry - this is their child, after all - and assume the parent is choosing the "easier" of the options.

And it is impossible to know, looking at a family new to an eating disorder diagnosis, what that family was like before the illness or what miracles they can perform if offered tools and support and the benefit of the doubt.

The inertia of normal, healthy parenting isn't swept away in a day, a week, or a month of living in the new world we enter when our child is gravely ill. It takes time, training, and compassion.

Let's learn from the tragic history of blaming the parents of autistic children, schizophrenic offspring, asthmatics, and tuberculosis patients. It's an illness, and parents are the best asset a child has.

9 comments:

Harriet Brown said...

Bravo. So well said.

marcella said...

And those of us who are not "In Denial" are "Controlling", "pushy" or "over-anxious" - we can't win!

mary said...

I recall when a parent in a forum which offered support to parents wrote me and told me I was in denial! It's an offensive remark but I knew my own mind. You were one of the few parents who treated us all like we were intelligent Laura. And you are still doing it!

carrie said...

It's true- the eating disorder community has, for so long, put parents in an almost impossible position.

I think some of the "denial" is in the form of love. If I saw that my child was very distressed by eating, it would be hard for me to encourage or request that she eat. I'm trying to fit my cat in a harness/leash for when we move, and she hates it. Aside from the fact that a squirming, yowling cat is sort of funny, I felt bad for the little dear. If I didn't have to have her wear the darn thing, I wouldn't. But I want her to be safe and healthy- thus the harness/leash. I did promise her a tiara if she behaved. ;)

Another problem is that, up until FBT, the treatments out there were lousy, so there was really nothing to do. It's not like cancer, where there's a diagnosis and a course of action.

Sucks, really.

Laura Collins said...

Marcella,
You are so right: they've got us coming and going.

Mary, you've always been a champion of both parents and patients - and I know I'm not the only one who appreciates it!

Carrie,
I will now forever see home refeeding with cat leashes!

Karen said...

I have a friend who is a nurse practitioner and I have all but stopped discussing my son's illness with her. She is sympathetic to the health risks of starvation but sees no reason why he shouldn't just pick up a fork and get over it. When I used to try to get professional advice from her I felt I was being tut-tutted for enabling his behavior. She does care about him and asks how he is but I won't go into detail with her anymore.

It's very hard to make him eat. I'm trying. He's trying. I'm celebrating today because he ate all his snacks last night including a half jar of organic peanut butter. Trying to shovel in 5000 Cal a day is really, really, really hard.

Laura Collins said...

Karen,

It is hard, and you are doing a great job.

Half a jar of PB? Yikes! Have you checked out the "High Calorie Recipes" discussion at Maudsley Parents? Some good ideas there for mixing it up. http://www.websitetoolbox.com/tool/post/laura/vpost?id=696425

carrie said...

Karen,

As someone who has gone through home refeeding from Jan to March of this year, I can say that PB was one of my helpful foods. PB on bagels, several tablespoons on each side, eaten openface with a banana sliced on top. It's really versatile. Other kinds of nuts were a favorite (cashews, macadamia, etc). Cheese and butter are easy add-ons. And shakes! I like coffee flavored premium ice cream, milk and chocolate Carnation Instant Breakfast.

But that thread is very useful.

Good luck! All you moms are amazing.

kristina said...

I just posted about mother blame today and this post really hits home. Can one be a parent and not get a bad rap?